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Re: Sleep Apnea Support/Questions Thread
My name is Jerry and I have sleep apnea. Getting the sleep study done and using the CPAP machine have been great!
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Re: Sleep Apnea Support/Questions Thread
I love my CPAP. So does my wife :). I actally bought a second machine (on my dime) -- I have a "full size" Respironics at home:
http://bipapst.respironics.com/images/product_side.jpg and a much smaller, lighter weight Respironics for travel: http://www.mseries.respironics.com/images/mseries.jpg The pictures are not to scale -- the travel unit is much smaller than the home unit. The catch with the smaller unit is that it makes more noise. Peter, make sure you try several different kinds of masks to get one that fits well and that you can sleep with. |
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You can bet I will be using this thread and speaking with one or more of you to get feedback on this life-changing step. |
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I got the same (full sized) one as you have Michael, just in a different color.
I hope that in a few months, when I am down to a healty weight, I won't be needing it any longer. |
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Not sure about your insurance, but mine covered the machine and covers replacement filters/mask/hose about every 3 months. Mine also gave me the option to switch to a new mask (nose pillows in my case) since I didn't like my first one. The DME (durable medical equipment) supplier calls me every few months to ask if I want new supplies, which they ship to me. |
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The second machine cost me about $1,500 (you can get it for less without the heated humidifier, but I strongly recommend the humidifier -- and you need to make sure your doctor includes that on the prescription if you want one). I got it in 2006 when my job changed and I was going to be traveling more (I got my first CPAP in 1999, and the home machine that I have now I got in 2005). It was painful trying to carry my CPAP, laptop, and clothing, etc. in one bag, so I opted for the smaller machine. |
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I work for a medical supply company that provides CPAPs and supplies, so if anyone has any questions, please feel free to ask!
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My doc told me that sleep medication was a no go for me, not during the test and never again after they saw the results. Only sleepmeds I can take is melatonine.
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How often should you change your mask and hose?
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I change them once a year, but I clean them once a week
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Well, I had my follow up today and, as I expected, I have sleep apnea.
Those of you who are familiar with this are probably aware of a measurement call the AHI - which is a composite measure of sleep apnea. Anything over 5 is considered mild and anything over 15 is considered severe. I came in with a 29! The machine has been ordered and, of course, awaiting approval from my insurance. |
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Thanks for the support, fellas.
As part of the follow up, I got my nasal passages and throat scoped. After the local, it was only mildly uncomfortable. Now that the local has worn off, my throat is really sore. Hopefully, the burgundy I am enjoying while preparing pasta with red sauce will dull the pain. |
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By far the hardest thing for me initially was sleeping on my back. I had always slept on my stomach. My wife got me a TemperPedic (sp) pillow that has a little raised part where the curve of your neck goes. It made it much more comfortable for me.
As for the hose... My CPAP is on the nightstand which is on my right when I am laying in bed on my back. I just put the hose under my right arm around the bicep area and it just kind of stays out of my way. |
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It has certainly made a big difference for me. I feel more rested and I no longer snore.
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The bottom line is that you need to be persistent in order to accommodate the mask and hose while you sleep. |
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I dont remember if I updated this or not, but I went back for a second sleep study with the CPAP. I have one ordered for me. my pressure is "+10", the same as my uncle. (Now we have something in common!)
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Got my APAP machine today. It's a CPAP that automatically adjusts the airflow/pressure.
Tonight is my first night with it. I'm optimistic. |
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Thanks. |
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How does an APAP work? Is the a sensor that measures resistance? I thought that during the study the only way they could measure how much pressure was needed was to sort of guesstimate the pressure level as to how much was needed to keep you breathing?
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Peter, don't expect miracles in a night, it takes a few days/weeks to get used to the machine and it also takes a few weeks before you notice the difference, but once that happens you wish you had done it years ago.
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The first night was cumbersome. Woke up almost every hour. I think mostly due to having the headgear/mask on. The machine was very quiet. I'm not sure the humidifier was working or set properly. Virtually no water was used and I was very dry this morning. |
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Ferdinand is right -- it will take getting used to. You have to learn to cope with the hose and mask without waking up. The good news is that you can and will get used to it. You should also sleep better right away, and your sleep will continue to get better as you get used to your machine, hose, and mask!
BTW, what brand machine do you have and which mask did you decide on? |
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I have a REMstar Auto A-Flex and a Respironics System One Heated Humidifier.
http://respironicssleeptherapysystems.respironics.com/ The mask is the ResMed Mirage Quattro. http://www.resmed.com/us/products/mi...ml?nc=patients I didn't decide on the mask. My specialist prescribed a full mask and this is the one I was given. |
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Wow:banger
I'm so happy I found this thread. I also have sleep apnea. I most likely have it for years but I just finaly went for the test in September. Because I had a lot of migranes and I'm tired but couldnt sleep during the day and was up a lot during the night. I'm very much the type of guy that like to try things before giving up. The test was really bad. The tech was really nasty and very un supportive. She put the full face mask on me and I felt like I'm in a jail with all those wires. But I lived, At the end I was given a bipap machine and I use the "M" size face mask. It's usualy comfortable when I go to sleep, I like to fall a sleep on my side but I usaly have this thing all most every night at about the same time. After about sleeping 4 - 41/2 I wake up, feel un comfortable and remove the mask. I am sure that those few hours that I sleep with the machine are much deeper and un interupted. But I want to get used to maybe taking it off (and maybe use the bathroom or maybe not) make my self cumfy again and fall back a sleep. Anyone have this issue? I know I'm makeing improvment but I want to do it right. Thanks. |
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I'm still not finding a difference after a couple months, but so be it. Last visit with the Doc he told me I needed to use the machine, ok. Then again, I didn't feel I had a problem to begin with, the heart nurse wanted me to take the test- I think she thought maybe needing the pacemaker was caused in part by my supposed apnea.
Anybody tried this? http://www.nomask.com/ |
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Heading into night #4. I know I will get used to it soon enough. But I am also fighting a cold with some mild congestion and post-nasal drip. So the adjustment to the mask has been a bit of a challenge. I am determined to make it work, though. |
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I also find that colds are easier with my CPAP, since the CPAP is pushing air in it seems to keep my nasal passages a little more open. Also, when I have a cold I turn up the heat on my humidifier a notch -- that always helps me.
I have also noticed "little signs" about myself -- if I find myself randomly "sniffing" (frequently) throughout the day -- when I finally do realize it** -- I know that I need to turn up my humnidifier because I am sniffing due to being to dried out. **most of the day I am in a fog and have no idea what I am doing or why :) |
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Actually, I had to discontinue use of the machine when I had my latest cold- I was stopped up and had to breathe thru my mouth. I remain unconvinced about the whole rigamarole, but I reckon I might as well keep using the dang thing as my BOTL here indicate its usage is a positive- and I'll believe them over any brochure that tells me so!
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